Working while you are a chronic illness patient? Well, it does work for some & doesn’t work for others, it is very different for everyone. I am from the age of 13 facing a health mess, proclaiming my throne of a chronic illness patient with SLE (lupus) an autoimmune disorder I had at the age of 14! Well, chaos is a friend of mine !
Later on with the strokes and the paralysis attacks, my future was always dicey, I stay in India and was brought up with goodies & care possible but at the education system at that time was not patient friendly . As a grew up I went to New Zealand to pursue my education and I also was able to work with a telecommunication company in Auckland and at that time at the age of 20-21 somewhere for those 2-3 years, I was able to to work and study at the same time mostly because of the practical lessons at college weren’t tiresome at least not for me after studying India. Even the office atmosphere where I used to work was amazing like I had never realised that I would be treated as a handicap or as somebody or disabled. I was ready to work full time or needed no sympathy or pitted upo. Phew! I unfortunately had got another flare-up and had to come back to India post which it was all rocky roads, I couldn’t go back to New Zealand and to stay back in India and that was the time I had no job and nothing to do for always another two years because of the climate it was not Suiting your much the sun was hard on me was staying with mom. But after my mother’s death I had no way out but to start working again and that was when I realise what working & living with chronic illness means!
Work life with Chronic illness!
In the start I always assumed I will be treated with the same HR laws I got the privilege of having during my stay in New Zealand but it was quite different in India. I would say my first company I worked with was a law firm that was a part of UK based company and they had the HR laws which were strong enough for me to get accepted and I was very happy working there. However, due to my illness,working full time while staying with all the chronic illness baggage , it was a little from column A, a little from column B which made it difficult! Six months later, I had to quit that job! Later on, I started working with another company which was run by brother in law of an acquaintance and I thought it would be better to work with known people while I have the chronic illness to deal with. Though, I worked for 4 years full time with the company and then I was diagnosed with Celiac & by 2016 I had Gastroparesis, some days I went part time and some days worked from home. Nevertheless, I found myself behind the eight ball.
I left the job due to the moral high ground I have and they were OK with me leaving, A nickel ain’t worth a dime anymore!
Life’s a journey!
So I moved on to the next best thing, my own blog that I work on now, I manage my own website and do my blogging with spreading Awareness of autoimmune disorders on my Facebook page as well as my blogs and my Instagram page. I try to connect to more people and create more opportunities in the field of writing itself for me to work as a independent writer. Afterall, All our words are but crumbs that fall down from the feast of the mind, ain’t they?
With chronic illnesses, I knew my limitations & So, I took the road less traveled by, And that has made all the difference!
Never underestimate yourself nor compare with what others can do & what you can! We all are born different & so it be! Why complicate….right?
I got the gist of it & understood I need to work on my own terms and work from home which gives you added benefit that you can work in your comfort zone.
When you aren’t well it is perfectly fine to just relax! You can earn extra when you are well, also work to stay engaged, to feel good & to stay active not to make a living! A kernel of truth, Being happy is All That Matters nothing else will ever matter!